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So-called “citizen scientists” are tapping into the power of the internet and exchanging information among like-minded individuals to learn more about specific diseases, often genetic disorders, usually in response to general dissatisfaction with the medical and research establishment as a whole. The movement is the latest manifestation of regular people who share a focused interest and who want to contribute more knowledge that will improve the understanding of that specific interest. For example, citizen scientists previously have formed associations where they investigate and provide information to scientists on subjects such as bird migrations, global warming, and their observations of various astronomical events.
